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EDS COMMUNITY COLLABORATIVE
A band of zebras collecting insights to connect the dots of invisible illness.
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Join date: Jan 13, 2023
Posts (16)
Oct 24, 2025 ∙ 3 min
Why Weather Hurts: The Science Behind the “October Slide” in Chronic Pain
If you’ve ever sworn you could predict the weather better than your weather app, you’re not alone. Many people with Ehlers-Danlos syndrome (EDS) and other connective tissue disorders notice their symptoms flare when the seasons (or weather systems shift)—especially during what patients call the October Slide . So what’s actually happening when your joints ache, your head throbs, or your body feels “heavier” just before a storm? The answer lies in barometric pressure , the weight of the air...
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Jun 27, 2025 ∙ 3 min
The Tree That Said No: Rewriting The Giving Tree with Boundaries (and Backbone)
Once upon a time, there was a tree. But not *that* tree. Not the one you’re thinking of — the self-sacrificing doormat of a trunk from...
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Jun 10, 2025 ∙ 3 min
The Tin Man Chronicles: An EDS Expedition Down the Yellow Brick Road of WTF
When your body rusts shut, your joints scream for lube, and movement is just another twisted fairytale. Once upon a...
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Christie at Journey2Joyous
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