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EDS COMMUNITY COLLABORATIVE
A band of zebras collecting insights to connect the dots of invisible illness.
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When Your Body Hurts and Your Emotions Betray You
Understanding Rejection Sensitive Dysphoria For those living with chronic illness, the emotional pain of RSD can feel as relentless as the physical — and it deserves just as much attention. There's a particular kind of hurt that is difficult to explain to anyone who hasn't felt it. Your doctor adjusts your treatment plan without fully consulting you. A friend doesn't respond to your text about a flare-up. Your partner sighs when you cancel plans — again. And in a split second
Jun 1916 min read


Why Weather Hurts: The Science Behind the “October Slide” in Chronic Pain
If you’ve ever sworn you could predict the weather better than your weather app, you’re not alone. Many people with Ehlers-Danlos syndrome (EDS) and other connective tissue disorders notice their symptoms flare when the seasons (or weather systems shift)—especially during what patients call the October Slide . So what’s actually happening when your joints ache, your head throbs, or your body feels “heavier” just before a storm? The answer lies in barometric pressure , the wei
Oct 25, 20253 min read


The Tree That Said No: Rewriting The Giving Tree with Boundaries (and Backbone)
Once upon a time, there was a tree. But not *that* tree. Not the one you’re thinking of — the self-sacrificing doormat of a trunk from...
Jun 28, 20253 min read
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