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Understanding Your Flare Fettered Friend

Understanding Your Flare Fettered Friend

Understanding Your Flare Fettered Friend

What does a pain flare feel like? A friend explains in this guest article Has a friend recently told you: I feel a pain flare coming on ,...

Apr 167 min read

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“Who Says Disability Isn’t a Full-Time Job?”: The Frustration Fatigue Reality of Uncoordinated Care

“Who Says Disability Isn’t a Full-Time Job?”: The Frustration Fatigue Reality of Uncoordinated Care

“Who Says Disability Isn’t a Full-Time Job?”: The Frustration Fatigue Reality of Uncoordinated Care

Frustration Fatigue If you live with hypermobile Ehlers-Danlos syndrome (hEDS), you likely already know the truth: managing your health...

Apr 25 min read

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Rare Disease Day Runaround

Rare Disease Day Runaround

Rare Disease Day Runaround

Hypermobile EDS is Not Rare, But Rarely Recognized We Need to Talk About Hypermobile EDS Hey there, fabulous readers! Today we’re diving...

Mar 13 min read

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This information is not designed to replace a physician's independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the information on this site or newsletter is for awareness purposes and cannot be intended or used as medical advice.

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