top of page
Off White Background Texture White linen backgroundjpg.jpg

WHAT WE DO

 what we do best

We've taken painstakingly effort to collect Ehlers-Danlos syndrome (EDS) resources for living well with the disorder, and its common comorbidities. We're sharing them with you on this site and in our monthly newsletter.  Don't miss any news, updates, medical research papers, useful products and much more!

2.png

what zebras are saying

The content blows me away! I don't know how they are pulling this off, but I'm so glad they are. 

ANONYMOUS

Newsletter
EDS SHARE logo_.png
Off White Background Texture White linen backgroundjpg.jpg

EDS NEWSLETTER

Tune in monthly for rich in resource updates. 

​

what you can expect

  • News in the EDS community

  • Medical research highlights

  • Top 5 Resources

  • One Deep Dive into a chosen topic

  • Memes worth sharing

​

​

FREE FOR PATIENTS 

APP
1_edited.jpg
Off White Background Texture White linen backgroundjpg.jpg

EDS APP 

An online repository of resources. Searchable by keyword, or type of content category - plus the ability to create your own private favorites list to create your personal library. â€‹

what you can expect

  • Easy search tool of thousands of EDS-related articles, papers, products and more

  • Upvoting for the community to decide what's most valuable

  • Private profile to create favs list

FREE FOR PATIENTS 

Off White Background Texture White linen backgroundjpg.jpg

follow us on Instagram

EDS SHARE logo Sending Helpful Articles Research and Education

GET CONNECTED WITH US 

  • Facebook
  • Instagram

COPYRIGHT © 2023-2025 EDS SHARE NEWS from Journey2Joy LLC  

This information is not designed to replace a physician's independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the information on this site or newsletter is for awareness purposes and cannot be intended or used as medical advice. 

bottom of page