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EDS COMMUNITY COLLABORATIVE NEWS

A band of zebras collecting insights to connect the dots of invisible illness.

Info on EDS & More

BEST TO SHARE & SIMPLE

Doctor guide written by EDS expert doctor to share with your doctors, "What Your Specialists Need to Know."
One page guides courtesy of Bobby Jones CSF on EDS, dysautonomia or POTS, and Chiari malformation.
Want more? Use our searchable app to create your own private favorites library!

See our listings of books available (including links to Amazon):

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More Resources

Apps & Tools

Here's a list of some of the best apps to use when you have EDS/HSD or other conditions like POTS, MCAS or other health and chronic conditions.

Ebooks

Here's links to a few great resources and ebooks: one on how to locate credible medical info online Don't Call Dr. Google.

Accomodations

Here's information on getting work accommodations if you are employed. Or if you need help for the students and kids with EDS in your life.

Document It

Here are a few great trackers for symptoms and other templates on how to prepare for doctor appointments, track or prepare documentation.

Webinars

A few EDS empowering webinars from patient advocates and expert providers on one of our advisory board members YouTube channel.

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