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A new collaborative community newsletter for EDS is here! EDS S.H.A.R.E. is where patients, providers, and advocates come together in a joint effort to build a collection of the best resources on hypermobility, EDS, and its common comorbidities. It stands for what we do, we share: Sending Helpful Articles, Research, and Education. Because that's how we'll get through this, together. We are a group of EDS patients and advocates collecting and connecting the dots and sharing what we've found with the community.
 

Plus, you can contribute to the growing knowledge base on how to get diagnosed, get treated, doctor webinars to watch, find helpful products and apps, and get ideas for how survive life with EDS. If you have a suggested news article, a blog, a resource or a new medical research publication you want to pass along, share it here

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A collection of EDS resources 

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LATEST NEWS

Check out the latest newsletter here. 

SUBSCRIBE FOR HELPFUL PATIENT GUIDES

Getting an EDS Diagnosis

Overwhelmed & Underdiagnosed- Getting an EDS diagnosis guidebook

Managing Boom & Bust Cycles of Chronic Fatigue

Rollercoaster of boom and bust cycles with chronic illness

Surgery Prep Tips for EDS

EDS hospital guide

BUILDING A KNOWLEDGE BASE
FOR THE COMPLEX CONDITIONS COMMUNITY

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Stop searching! Get information sent directly to your inbox!

SUBSCRIBE NOW 

Get involved in the movement to help find answers faster through community sharing. #SharingisCaring

 a great resource

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GRAB THE EDS CHECKLIST FROM DOCTORS TO ASSESS FOR ADULT AND PEDIATRIC EDS

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FEATURED:
THE BEIGHTON SCALE
EXPLAINED

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FIND ANSWERS FASTER

SUPPORTIVE
PARTNERS 

Check out these nonprofit resources for more information or to learn more...

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WHAT'S THE PURPOSE?

OUR MISSION

Helping zebras get up and fight!


Together, we are an advisory council of several EDS patients and providers who came together to build a better way. An easier, faster way to access information on all things Ehlers-Danlos syndrome (EDS). We believe in the power of positivity with a focus on making lemonade out the the EDS life of lemons. If you agree, join us. Together, we hope to bring better answers so you can get the best out of your zebra life.

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ADVISORY BOARD CONTRIBUTOR

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christie cox

"It's important to share resources among ourselves. Finding answers for EDS shouldn't be this hard."

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