A new collaborative community newsletter for EDS is here! EDS S.H.A.R.E. is where patients, providers, and advocates come together in a joint effort to build a collection of the best resources on hypermobility, EDS, and its common comorbidities. It stands for what we do, we share: Sending Helpful Articles, Research, and Education. Because that's how we'll get through this, together. We are a group of EDS patients and advocates collecting and connecting the dots and sharing what we've found with the community.
Plus, you can contribute to the growing knowledge base on how to get diagnosed, get treated, doctor webinars to watch, find helpful products and apps, and get ideas for how survive life with EDS. If you have a suggested news article, a blog, a resource or a new medical research publication you want to pass along, share it here.
Welcome to the ZEST of EDS
hi zebra! we see you!
SUBSCRIBE FOR FREE GUIDES
BUILDING A KNOWLEDGE BASE
FOR THE ZEBRA COMMUNITY
THE BEIGHTON SCALE EXPLAINED
FIND ANSWERS FASTER
Check out these nonprofit resources for more information or to learn more...
WHAT'S THE PURPOSE?
To turn life with a chronic illness like EDS on its backside!
Together, we are an advisory council of several EDS patients and providers who came together to build a better way. An easier, faster way to access information on all things Ehlers-Danlos syndrome (EDS). We believe in the power of positivity with a focus on making lemonade out the the EDS life of lemons. If you agree, join us. Together, we hope to bring better answers so you can get the best out of your zebra life.
ADVISORY BOARD CONTRIBUTOR
"It's important to share resources among ourselves. Finding answers for EDS shouldn't be this hard."