EDS AWARENESS CAMPAIGN FOR MAY
sing out loud zebras
to show you "Care-e-oke"
Together we can sing loud, care more, help hypermobility awareness soar!
Tired of not feeling heard? This May, let's collaborate to raise awareness around the globe for Ehlers-Danlos syndrome (EDS) patients everywhere. It's simple to join in the social media campaign by posting or sharing your own sing-out video with hashtags to elevate the noise level on what it's like to be a zebra.
#Care-E-Oke Campaign Downloads Available
EDS artists songs
hashtags & images to share
video templates & ideas
sample social media posts
WAYS TO JOIN IN
​ a great synopsis
GRAB THE 411 ON EDS IN THIS QUICK GUIDE ON WHAT YOU SHOULD KNOW ABOUT EDS & HOW TO BETTER SUPPORT YOUR ZEBRA!
Want more to read up on EDS?
1
SHARE ON SOCIAL
Download the social media post ideas and images. Edit them for your channels. Use the campaign hashtags #Careeoke, #EDSAwarenessmonth and #SingOut4EDS to help spread awareness during May.
how to easily do it
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Check out the Care-e-Oke Challenge Toolkit to read tips and access resources to download and leverage different collateral to spread the word on your channels.
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Use the provided images, icons, social media posts, sample video scripts and more ideas for the campaign.
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Tag three or more people to grow our circle of knowledge.
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Add www.edsshare.com to your post to share basic information and resources on EDS including our guide to what you need to know about EDS and hypermobility.
HOW TO JOIN
2
CREATE YOUR OWN SING-A-LONG VIDEO
To join in, create your own Care-e-oke video as you jam to your fave song, play an instument, or play an mean air guitar. Any way you choose to sing out loud for zebras works.
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tips for making your video
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Use any of our collateral with your own creativity to record your own video to share with hashtags
#Careeoke, #EDSAwarenessmonth, #SingOut4EDS #ICareeoke4EDS or #ICareeoke4Zebras -
Use song lyrics remover tools such as Apple iSing or Spotify Kareoke
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Trouble recording video while playing music on your iPhone? See tips
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3
MAKE A DIFFERENCE
Want to contribute to the future of EDS knowledge? You can choose to learn and donate to several nonprofits working on various projects to support us that need our contributions to keep looking for answers.
where you can contribute
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Donate to medical research with expert doctors searching for patterns in their patients and designing solutions through the Bobby Jones Chiari Syringomyelia Foundation or one-click to donate directly.
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Donate to scientific research for diagnostic testing with expert researchers at the MUSC Norris Lab where hEDS patients work toward identifying the gene(s) responsible that will lead to easy blood test for faster diagnosis. Learn more at The Norris Lab or one-click to donate directly to their EDS research.
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Donate to support children with EDS by supporting their moms with The Coalition for Pediatric Pain and contribute to their education programs or support their Send a Smile program that sends love to patients during hospitals stays through this direct one-click to donate.
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Donate to innovative research that's up and coming through the EDS Research Foundation who is partially funding the economic impact survey from Penn State on the burden EDS can be on family finances.
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Donate to the information and knowledge-base growth by the volunteer media team curating content and hosting webinars with experts for the EDS Awareness newsletter and more.
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Check out our list of other EDS supporting nonprofits (alphabetically listed) so you can choose where you want give. Please also share any additional organizations not yet listed for a more inclusive list to meet the broad needs of the community. We pride ourselves on collecting and connecting patients with information and resources. Be sure to check Charity Navigator to ensure your trust where your resources are going first.
