If you have been diagnosed with Ehlers-Danlos Syndrome (EDS), you may be considering applying for disability benefits. Securing EDS disability claims can be a complex process, but with the right preparation and support from your doctors and advisors, you can improve your chances of approval. In this article, we will share specific tips to help you navigate the claims process effectively.
1. Gather Comprehensive Medical Documentation
One of the most crucial steps in getting your EDS disability claim approved is to have thorough medical documentation. This includes:
Detailed medical records from all relevant healthcare providers.
Diagnostic tests and results that support your EDS diagnosis.
Records of treatments and therapies you have undergone.
Documentation of any comorbid conditions, such as POTS or mast cell activation syndrome, which can complicate your EDS symptoms.
As Ellen Bresnahan from Ben Glass Law highlights in this video interview, insurance companies are primarily interested in what your medical records say. Ensure your doctors are documenting your symptoms and their impact on your daily functioning clearly.
2. Work Closely with Your Healthcare Team
Establishing a collaborative relationship with your healthcare providers is essential. Dr. Eric Singman emphasizes in this video interview on the subject the importance of having a supportive doctor who understands your condition. Here’s how you can foster this collaboration:
Communicate openly with your doctors about your symptoms and limitations.
Ask your doctors to provide detailed notes that document how EDS affects your ability to work.
Keep a symptom journal to track your daily experiences, which can help your doctors understand your challenges better.
3. Understand the Importance of a Supportive Doctor
Having a doctor who believes in your condition and is willing to advocate for you can make a significant difference. Ellen advises that you need a medical professional who can clearly articulate your limitations to the insurance company. If your current doctor is dismissive or unhelpful, consider seeking a second opinion.
4. Prepare for Your Disability Application
Before applying for disability benefits, make sure you’re prepared:
Understand the specific requirements of your insurance policy holder or the Social Security Administration (SSA including that you are required to have paid in to SSA for a certain time/funds allotment to be covered).
Gather all necessary documents, including proof of employment history and any previous claims.
Consider consulting with a disability attorney before submitting your claim to ensure everything is in order.
5. Be Ready for Potential Denials
It’s important to be aware that many initial claims for EDS disability are denied. Ellen suggests that if you receive a denial, review the letter carefully to understand the reason behind it. This information can be invaluable for your appeal.
Having a legal advocate can be beneficial during this process, as they can help you navigate the complexities of appeals and ensure your case is presented effectively.
6. Document Everything
As you go through the claims process, keep thorough records of all communications, medical visits, and treatments. This documentation can serve as vital evidence of your condition and its impact on your ability to work.
Applying for EDS disability benefits can be challenging, but with careful preparation and the right support, you can improve your chances of a successful claim. Remember to gather comprehensive medical documentation, work closely with your healthcare team, and stay prepared for the appeals process. By following these tips, you can advocate for yourself more effectively and navigate the complexities of obtaining disability benefits.
For more:
Watch this video interview with doctors, lawyers and zebra (oh my!) on disability with EDS claims.
Read this ebook with the perspective from someone who has been through the trenches of this battle to win disability claims and
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